My Advice to Someone Starting Chemo

Oct 07, 2024

Read Time: 4 minutes

Author: Brinlee Luster, marketing and communications specialist, Huntsman Cancer Institute's Communications Team

Brinlee Luster sitting next to a window and giving the camera two thumbs up

“You have cancer” are three words I never thought I would hear. I was 21 years old when I was diagnosed with colon cancer. It wasn’t until I heard the word “chemotherapy” that the reality of my diagnosis truly hit me.

The thought of chemotherapy, or chemo, was frightening. I was scared–mainly because I didn’t know what to expect.

Now, having gone through many rounds of chemo, I have learned a lot about what to expect and it has eased my fears. Something I learned very quickly is that chemotherapy isn’t one-size-fits all. There are many different types, and everyone responds to it in different ways.

Here are some things I’ve learned that may help as you start chemo.

Remember, no matter your diagnosis or type of treatment, you are stronger than you think you are. You can do this!

Be Patient with Yourself

One of the first things I had to learn was patience—not just with the treatment process but with myself. It’s no secret that chemo is tough. Having a day where you need to stay in bed is okay. It’s okay to not feel like yourself.

I have days where I feel anxious or sad. The hospital that you go to likely has social workers and mental health professionals who can help you deal with some of the emotions you might feel.

Prepare Your Body

Hydrate, hydrate, hydrate! Staying hydrated can be a challenge during chemo, but it can make a world of difference. Personally, I’ve noticed that when I go into treatment well-hydrated, I feel like I can manage the medications better. Drinking plain water makes me feel nauseous during sessions, so I’ve learned to request IV fluids both during chemo and when I am feeling unwell throughout the week.

Alongside hydration, fueling your body is just as important. Eating a hearty, nutritious meal before chemo helps me stay energized and better prepared physically for what’s to come.

And finally, don’t underestimate the power of movement. Even a simple walk before chemo makes a noticeable difference for me. It not only helps me physically but also gets me mentally ready to take on the next few days.

Bring Things You Might Need

On my first chemotherapy day, my husband and I packed everything we could think of to stay entertained for the four hours we were at the treatment center: blankets, movies, earphones, books, games, and snacks. It looked like we were moving in! In the end, I only used the blanket and slept through the whole thing. Over time, you will figure out what works best for you.

Here are some things you might consider bringing:

Headphones for watching movies, listening to music, or tuning into a podcast
Books to pass the time
Blanket to keep warm
Snacks in case you get hungry
Hard candy to help with dry mouth or nausea

Brinlee Luster ready for chemo with a laptop to keep her entertained, a lollipop to help with dry mouth, and a blanket to keep her comfortable

Write Things Down

I recommend having one place to record everything from questions you have to side effects you experience.

Initially, I used random notes apps on my phone, which became scattered and hard to manage. Now, I use one specific place on my phone for everything, which helps me stay organized and remember important details. Documenting how you feel not only assists your doctor but also ensures you get the best care.

Communicate and Advocate

You will find as you go through treatment that you are having a continuous conversation with your oncologist and nurses. Open communication with your health care team, your loved ones, and yourself is crucial. Huntsman Cancer Institute uses the so you can easily send your care team a message at any time.

Let your doctors know how you’re feeling physically and emotionally. Advocate for yourself! If something doesn’t feel right or you need more information or a different approach, ask. Don’t worry about asking too many questions.

Learn from Others

I can’t tell you how many times I have reached out to people I know who have gone through cancer for advice on managing side effects and relating emotionally.

As an AYA (Adolescent and Young Adult) cancer patient, being part of the Huntsman-Intermountain Adolescent and Young Adult (HIAYA) Cancer Care Program has been so valuable. I have been to a couple of the activities that they plan and it was amazing to connect with people my age going through something similar to me.

You can’t do this alone, and you don’t have to. Surround yourself with people who lift you up-whether it’s family, friends, or a support group. Find your community.

Take it One Day at a Time

Lastly, remember to take things one day at a time. Looking too far into the future can be overwhelming. Instead, plan small, fun activities for your off weeks. Celebrate the small victories, like completing a round of chemo or managing a side effect better than before.

I hope that by sharing my experience, I can help ease some of the fears you might have as you begin chemotherapy. Remember, you’re stronger than you know, and you’re not alone in this. Take it one day at a time!